Autism FAQs, as answered by Aspergirl
What is Autism (ASD)?
Autism Spectrum Disorder is a neurological condition that affects the way Autistic people process, interpret and sense the world around us. All you really need to know is that no, you can’t die from it. No, it’s not contagious and no, there is no cure- and thank goodness! Autistics have more symmetrical brains and highly-active neurotransmitters which make us hyper-sensitive and aware of our surroundings. In general much of our discomforts and life challenges are related to stigma and lack of affirmative care while navigating a society that doesn’t have our needs at heart. Once we learn about our triggers and needs, it is entirely possible to live rewarding and fulfilling lives. Generally, Autistics prefer not to be called “people with Autism” as that descriptions suggests we are subhuman, rather than equal beings with slightly different brain structures.
Do I need to get a diagnosis to be Autistic?
Definitely not. If you suspect you are Autistic, have done as much research by Autistics as you can and still believe you are Autistic, then you have your answer. Many Autistics do not get the positive ASD diagnoses they were hoping for when they finally get a professional assessment. This is because the ASD diagnostic test is outdated, was designed by neurotypical psychologists and is based on extreme versions of Autistic traits. Those who are prone to masking or do not fit the stereotypical mold of Autism will struggle to get a diagnosis, therefore a positive self-diagnosis is often even more accurate as you know yourself best. The only instances having a professional diagnosis may be needed is if you’d like to access longterm disability benefits and require documents to access services at your pace of work or school.
I think I might be Autistic. Now what?
Your next steps really depend on what country you live in and what resources are available. If you have a family physician, start by having a conversation with them. Make sure to do as much research as possible and be sure to include the real stories of Autistic people, especially ones that resonate with your experiences especially. Getting a professional diagnosis in adulthood is not easy and can be an expensive and lengthy process, so try and seek out psychologists with experience assessing Autistic adults. Be as honest as possible during the process- the more information and raw emotion you show, the more likely you are to get an accurate assessment. You don’t need a professional diagnosis to be part of the Autistic community or receive therapies. If you believe you are Autistic, that is enough for many forms of care and acceptance.
My child is Autistic. How can I support them?
As every Autistic person is different, the best you can do is be as encouraging as possible on their journey- whatever it happens to look like. Just because your child is not speaking, doesn’t not mean they never will, and vice versa. Therefore, it is crucial you be as positive as possible, include your child in all phases of seeking out support, and abstain from speaking about your child in the third person when they are present. Figure out what your child truly enjoys and do those activities with them as much as possible. Celebrate any progresses made, even if small, rather than punishing or shaming “poor” behaviour. Any programs, like ABE therapy, that promote correction over care, should NOT be considered as they will ultimately cause long-term traumas. Allow your child to develop in whatever way is normal for them, rather than enforcing a “normal” standard.
What does neurodiversity mean?
Neurodivergent is the term to describe neurotypes (brain structures) that differ from the average, (neurotypical) human’s brain. Along with Autism, there are myriad other neurotypes that fall under the neurodivergent umbrella: ADHD, Dyslexia, Dyspaxia are a few more well-known neurodiverse neurotypes, and often these conditions overlap. Neurodiversity is the celebration of these differences, with the emphasis on further understanding and including neurodiverse people in society and research, rather than marginalizing us. The history of Autism is rooted in racism, sexism, oppression and conformity, so the neurodiversity moment focuses on inclusion, dignity and empathy for folks on the neurodiversity spectrum. Just like Autistic people, the spectrum of neurotypes is unlimited and no two people have the same exact brain, yet we are all human.
Will I ever be able to live a normal life?
“Normal” is all relative! Once you are able to figure out what your real needs are, which includes sensory and environmental triggers, there is no reason why you won’t be able to live a healthy and fulfilling life. Many Autistics struggle because we tend to endure pain until we reach breaking point as we have never been taught to advocate for ourselves or value an Autistic way of thinking and doing. The journey to self-acceptance and living an open Autistic life is not easy, but it is extremely rewarding once we make the commitment to ourselves. It will likely mean having to change our lifestyles, rebuild relationships and in some cases, have a fresh start. Every Autistic’s journey is different and there is no right or wrong answer. I recommend seeking out a therapist who specializes in adult Autism, pursuing your special interests to help your transition, and joining an Autism support group or online Autistic community to start.